Jane contacted our team a few months ago to ask if she could conduct a virtual focus group during DSMA’s Twitter chat. We thought it was a great idea and hope that you feel the same. Jane take it away…..
My name is Jane and I’ve had type 1 diabetes for 40 years in June. I’ve been helping others live well with diabetes, as a nurse and certified diabetes educator, for 20 years. My personal and professional experiences in diabetes care have shaped my feelings about words and diabetes. A couple years ago I came across my notes from a talk I gave in 1993. It was a presentationfor nurses about the impact of words on people and their health, and I still find this topic both intriguing and an ongoing challenge.
I live in a rural resort town in northwestern Colorado, where Iwork remotely teaching and overseeing the Master of Science in Diabetes Education and Management for Teachers College Columbia University (which is in NYC!). I make it my mission to help diabetes professionals use words that put people first and focus on their strengths, not weaknesses. This year I amembarking on a research program which will look at the words we hear, see, and use in diabetes care (and diabetes life), and the impact those words have. I am excited to host a virtual focus group on DSMA’s live Twitter Chat on Wednesday, March 25, 2015. It will proceed like a usual weekly chat, except that it will be a focus group and the questions will be about diabetes-related words and the feelings they bring up.
Conversations, observations, and reading have made it clear to me that some of the words and phrases used in diabetes care are upsetting to those who live with diabetes. So I decided to get together with people who have diabetes and ask them about it directly. Through a total of four focus groups (two web-basedand two in-person) I hope to gather information about what those words are and how they make people feel. In other words, what diabetes-related words bother you?
I hope you will join me in the DSMA virtual focus group on Wednesday night at 9 pm Eastern. Your contributions to this discussion are very valuable. If you would like to read the full explanation and informed consent for the study, please visit here. You are welcome to leave a comment and ask any questions you may have. You can also contact me directly with questions by emailing me at firstname.lastname@example.org.