Diabetes Community Advocacy Foundation

Diabetes Community Advocacy Foundation -

Special Edition of #DSMA

Jane contacted our team a few months ago to ask if she could conduct a virtual focus group during DSMA’s Twitter chat.  We thought it was a great idea and hope that you feel the same. Jane take it away…..

My name is Jane and I’ve had type 1 diabetes for 40 years in June. I’ve been helping others live well with diabetes, as a nurse and certified diabetes educator, for 20 years. My personal and professional experiences in diabetes care have shaped my feelings about words and diabetes. A couple years ago I came across my notes from a talk I gave in 1993. It was a presentationfor nurses about the impact of words on people and their health, and I still find this topic both intriguing and an ongoing challenge. 

live in a rural resort town in northwestern Colorado, where Iwork remotely teaching and overseeing the Master of Science in Diabetes Education and Management for Teachers College Columbia University (which is in NYC!). I make it my mission to help diabetes professionals use words that put people first and focus on their strengths, not weaknesses. This year I amembarking on a research program which will look at the words we hear, see, and use in diabetes care (and diabetes life), and the impact those words have. I am excited to host a virtual focus group on DSMA’s live Twitter Chat on Wednesday, March 25, 2015. It will proceed like a usual weekly chat, except that it will be a focus group and the questions will be about diabetes-related words and the feelings they bring up.

Conversations, observations, and reading have made it clear to me that some of the words and phrases used in diabetes care are upsetting to those who live with diabetes. So I decided to get together with people who have diabetes and ask them about it directly. Through a total of four focus groups (two web-basedand two in-person) I hope to gather information about what those words are and how they make people feel. In other words, what diabetes-related words bother you?

I hope you will join me in the DSMA virtual focus group on Wednesday night at 9 pm Eastern. Your contributions to this discussion are very valuable. If you would like to read the full explanation and informed consent for the study, please visit here. You are welcome to leave a comment and ask any questions you may have. You can also contact me directly with questions by emailing me at janekdickinson@gmail.com.

#DSMA ‘Rents Twitter Chat | Monday, March 16 9PM EST

DSMA 'Rents EditionWe’re trying something different in our DSMA Live: ‘Rents programming. This coming Monday we will conduct a special twitter chat during our normal Live show time slot! We’re picking a topic from our most recent show with Katy Killilea of “Bigfoot Child Have Diabetes.”

We covered a lot in this show, but one thing kept popping up throughout the hour: guilt.

Our chat will focus on feelings of guilt. Do you feel it? How do you cope with it? How do you counsel others who experience it?

We’re excited to be conducting our first show carryover Twitter chat! We hope you will join us!! Just follow #DSMA on Monday, March 16 at 9PM EST and join in the chat!

Check Out Health Podcasts at Blog Talk Radio with DiabetesSocMed on BlogTalkRadio

Afterthoughts DSMA Live: ‘Rents | Katy Killilea of Bigfoot Child Have Diabetes

Katy and FamilyKaty Killilea of Bigfoot Child Have Diabetes joined us on last night’s DSMA Live: ‘Rents.

Katy’s son, Briggs, was eight years old when he was diagnosed with type 1 diabetes. That first night in the hospital, she started writing her blog.

Since Briggs was diagnosed, Katy discovered through Trial Net that both she and her other son have markers for T1D. Listen to their experiences, including how her son was treated and can now pass the glucose tolerance test that he previously failed.

We touch upon so much in this show, including our admiration for Mr. Mike Lawson’s video series. We all want to know which is your favorite. Head over to Bigfoot’s blog and let us all know!

Please mark your calendars: we will be holding a special Twitter chat on Monday, March 16 focusing on a topic just from this show. Join us at 9PM EST and follow #DSMA!

Check Out Health Podcasts at Blog Talk Radio with DiabetesSocMed on BlogTalkRadio

#DSMA for Parents of Children with Diabetes

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I am excited to announce, we will be co-moderating a DSMA ‘Rents Edition Twitter chat with Phoenix Children’s Hospital Diabetes Program.

Topic: Caregiver Burnout 

When: February 16, 2015 at 12 PM ET

Where: Twitter

Follow: @DiabetesSocMed for the questions and include #dsma in your tweets

Hashtag: #dsma

Interested in participating, but not sure how? Check out Kerri’s post, Diabetes and Twitter 101.

We are searching for a team of parents to help come up with content for monthly (for now) chats. If you are interested, please send an email to cherise@diabetesCAF.org.

Afterthoughts DSMA Live: ‘Rents | Sandy Struss

Sandy StrussSandy Struss has lived with Type 1 diabetes for 26 years and has dedicated her life to being “a force for good.”  She says that diabetes has given her a profound awareness of her own mortality, and believes that each of us has the opportunity to make a difference in the world with the gifts we’ve been given.

Sandy recognized early on that even though she didn’t like having diabetes, she had a choice to make – she could be bitter because of it, or she could be better in spite of it.  The journey hasn’t been easy, but she’s proud of the woman she’s become.  At 43, she continues to rock life as a “diabadass” and is currently training for her 2nd Tough Mudder obstacle course race.  Professionally, Sandy works as the Marketing Manager for Animas Canada.

Please listen in to the archived show with Sandy and hear about her diagnosis story at the age of 17, how she managed in a different country through her college education and how she became a Tough Mudder Diabadass!

Check Out Health Podcasts at Blog Talk Radio with DiabetesSocMed on BlogTalkRadio